Rare Disease, Real Impact: How a Nameless Disease Created a Community at SLC6A1 Connect

May 30, 2025 5:30 PM - 8:00 PM (CDT)

Description

Join UTSW's Biotech Club for a panel discussion with SLC6A1 Connect. They will be hosting panelists Amber N. Freed, Kim Fry, and Whitney Feldman MHA, mothers and leaders from SLC6A1 Connect. We are also honored to host Dr. Steven Gray, a UTSW professor researching SLC6A1, a rare neurological disorder known only by the gene that causes it. Learn how collaboration between scientists and families drives progress, and how advocacy is shaping the future of rare disease research.