State Report Card from NORD
Since 1983, the National Organization for Rare Disorders (NORD®) has advocated for those with rare diseases in policy decisions at both state and federal levels. In 2015, NORD launched its State Report Card to assess how well states support rare disease patients and provide a tool for advocacy. The latest edition, based on data from November 2024, highlights key policy areas, though it is not exhaustive. NORD hopes the report will help patients, advocates, and policymakers push for better state-level policies.
State Report Card from NORD